Sunday, August 12, 2012

Miracles from Day 1: I CAN WALK

I can't believe I am actually doing a blog. People have kept telling me to start a blog, but I just kept brushing it aside. Best part, I got an instagram and a blog in the same week! What is happening to me? Here I am on a Sunday night, and I had a quick inspiration to start a blog, so I am doing it before logic kicks in telling me not to. One reason I have never wanted to delve into blogging is because I don't really like sharing certain details of my life. And unfortunately those details take up most of my life. I am getting better at not caring what other people think though, and hopefully one person can benefit from me opening up and sharing hard things to talk about. If only ONE person can benefit from this, then my mission is accomplished. Don't worry, not all of my posts will be serious...but I am going to write about whatever I want to write about. I can do that on my own blog right?

And tonight I want to write about my birth.

On Sundays I try and focus on all the countless blessings in my life, and I can never forget the blessings that let me be here on this earth in the condition that I am in.

I'm being brave and diving right in.

I was born with a neurological tube defect called spina bifida.

(side note: anyone reading this that is a girl who wants to have kids someday, or knows a girl that wants to have kids someday -hopefully that's everyone- make sure you all know to TAKE FOLIC ACID!!!!!!! So your kids have a better chance not having this debilitating birth defect)

Most people born with spina bifida are paralyzed from the waist down. Most have a condition called hydrocephalus where cerebral spinal fluid leaks. Most have to have a shunt in their head to stop csf from leaking. Many have learning disabilities. Many have to wear huge braces on their feet and legs if they can walk at all. The list goes on and on of unpleasantness.

I don't have any of that. My story is quite bizarre because I don't have many of the symptoms that come along with the birth defect I have. See what I mean by Miracles from Day One?

While I was in the womb my parents found out about my condition. Luckily, my mom was too far along in the pregnancy to have me aborted, and even more luckily, because of our religion, abortion wasn't even an option. Supposedly the nurse gave them the news that it was too late to abort like it was bad news. So glad she wasn't my momma... The doctors weren't 100% certain I would be paralyzed, but they were like 99% sure. I had a cyst growing on my back and it was filled with all my nerves and other essential things that should have been in my body. When I was born I was a whopping 12 pounds!!!! 10 of it was me, the other 2 was the cyst. It looked like I had a huge brain thing attached to my lower back. I was born at the teaching hospital at UCLA where there were the best medical doctors at the time. Right away I was whisked away to a 6 hour surgery to try and put the jumbled nerves back in my body. I don't know if this occurred before or after that surgery, but the way to tell if a child is paralyzed or not is to tickle their toes. If they move, the baby isn't paralyzed. So the nurse took my 12 pound self into her arms and let my dad tickle my toes. Guess what? They moved. BLESSING NUMBER ONE. Actually blessing number 999, because I wasn't aborted, I was actually born alive, my nerves were encapsulated in a cyst instead of spilling out of me, most of my spinal cord formed, the cyst was lower on my back (higher it is the worse it is) yatta yatta yatta. I also wasn't born with hydrocephalus. I didn't have to get a shunt in my brain. I only had to wear little shoe insert braces growing up. I could walk.

I COULD WALK

People don't realize just how much they take that for granted. I take it for granted every single day of my life.
Even though I was spared so many hardships, spina bifida has affected, does affect, and will affect every moment of every day until the day I die. There have been more times than I want to think about, where I have been down in the dumps thinking about poor me. Why did this have to happen to me, why can't I just be normal, I don't want to be sick anymore, I want to be able to do what everyone else can...the list goes on and on. Sometimes when I am at my lowest points, this random phrase will pop in my head, I CAN WALK. No matter how sick I am, I can walk. No matter how big of a pity party I am throwing myself, I can walk. And for those of you who can't walk, you're alive.

Life is hard. Life is not easy. If we want to, there is always something negative to focus on, but the key is focusing on the numberless blessings that are given to us every second of every day. Yes, I have to always worry about health insurance because the doctors office is like my second home, yes, I am sick a lot, yes, I can't do some things that other people can do, BUT I am beyond blessed. I am alive, married to a wonderful man who somehow manages to deal with me, blessed with wonderful friends, part of a family who loves me for me, and did I mention I can walk?

I know this is so much easier said than done, but seriously, if you take a second to think about your life, even with all of the trials and hardships, Heavenly Father (God) is blessing you beyond measure. On days I forget that, which there will be plenty, I only have to think of the simple phrase, I CAN WALK.



15 comments:

  1. Thank you for sharing that :) I have a cousin who has spina bifida and you truly are a miracle :)

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  2. Taylor, thanks for sharing. It's always good to have a way to express what you're feeling and reach out. I hope Hazel has the same bravery.

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  3. I love you babe! Reading this also made me so grateful for the incredible miracle that you are!

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  4. Love you Taylor! You are amazing and YOU CAN WALK!!! You contribute so much to this world- you are a gift and I'm so grateful to be your cousin!!! Much love to you and thank you for sharing your story. I know you will touch so many people's lives in a positive way. Giving them hope, strength, comfort, love, encouragement and reminding them the simple joys of walking. Thank you!!!

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  5. you are amazing sister. love you and love your story. keep telling it. the Lord works through YOU!

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  6. A blog?!!! This is exciting. I have a blog too, but it's not that great of read ~ but yours is. You are truly a "Walking" Miracle Taylor! I've known you since you were a little baby. I remember when you were born. Look at you ~ yes you can walk and you can play the cello, the piano, you are knowledgeable about many, many things. You cut, color and style hair; the list goes on and on and on and your GORGEOUS!! You "walk" in a room and everyone takes notice. Because of your beauty. Inside and out. Thank you for sharing your feelings and thoughts in this blog. It will help you, but I feel it will help many, many others. Love you!!

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  7. You are so amazing. I feel so blessed to have you in my life as such an incredible friend! You are such an example and an inspiration! Love you girl! So glad you are you!!!

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  8. Thanks for sharing Taylor. You are like a daughter to me. I am so proud of how you have grown and handled your adversity. It inspires me to do better with my own. And you are a great friend to my Britt too! Love you dearly!

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  9. I love you Taylor. You have always been such a great example to me and I am so happy that I have that example in my life. I'm glad you can walk so we could make those trips to and from your house and mine to make memories together. You will always be a blessing in my life. -Kenzie

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  10. you are a walking miracle, thank you for sharing!

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  11. You're awesome Taylor! I love you so much. You have been and always will be so inspiring to me. I look forward to reading your blog :)

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  12. I LOVE YOU TAYLOR! & you know that. So glad I'm back and get to see you and your cute smiley face more often. Chin up, always! Love you lady :)

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  13. This is so great!! The world is lucky to have you and I am lucky to know you :)

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  14. Thank you so much guys! Your comments motivate me to be ok with sharing some of my more personal things in life. It's great to talk about some of it and I learn from writing it down! Weird maybe? But I do :) Thanks again

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  15. Tay you are simply amazing!!!!!! I love that you have started this blog! So many people can draw strength from your testimony and experienced. I feel so blessed that the Lord sent you in to my life. We didnt not meet by accident, the Lord knew I would need you to keep going! Love you tons and keep on writing!

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